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Interactive Autism Network Launches Survey for Grandparents

Date First Published: October 5, 2009
Date Updated: April 6, 2010

The Grandparents of Children with Autism Spectrum Disorder Survey is now closed. Our thanks to those who participated! Find out what more than 2,600 grandparents told us about their experiences.

The Interactive Autism Network (IAN) -- the nation's largest online autism research project --  is pleased to announce the launch of the Grandparents of Children with Autism Spectrum Disorders Survey.

Grandparents of children with autism spectrum disorders (ASDs) have been contacting the IAN team to say how much they would like to participate in autism research since the IAN Project began in April, 2007. "We know so much about these children," they have told us. "Shouldn’t researchers know what we know?"

The IAN research team came to realize that little is known about the extent of grandparents' participation in supporting families of children with ASD, or about the impact that having a grandchild with an ASD has on the grandparents themselves. With the kind assistance of Bonnie Gillman, Director of the Grandparent Autism Network, the IAN team developed a pilot grandparent survey. Forty volunteer grandparents tested this, submitting insightful feedback that permitted us to make improvements. The survey, which addresses many aspects of having a grandchild on the spectrum and asks grandparents to share their experiences, is now ready!

We invite grandparents residing in the United States and its territories to complete this anonymous internet survey. Grandparents can have a biological, adoptive, or step-relationship with their grandchild on the autism spectrum, and the grandchild can be of any age. The grandchild's family does not have to be participating in the IAN Research project in order for the grandparent to take the survey.

We would appreciate it very much if our readers would spread the word about the Grandparents of Children with Autism Spectrum Disorder Survey to everyone they know in the autism community. It is our hope that the results of this survey will help researchers, policymakers, and advocates learn about  the role grandparents play in the lives of children with ASD, and about how grandparents experience the joys and challenges of helping raise a child on the autism spectrum.

If you have any questions, please contact IAN at ian@ianproject.org or phone toll-free at 1-866-348-3440. Learn More About the IAN Project.

The Grandparents of Children with Autism Spectrum Disorder Survey is now closed. Our thanks to those who participated! Find out what more than 2,600 grandparents told us about their experiences.

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