How IAN Research Can Make a Difference
Date First Published: April 2, 2007
In research lies hope for the future ...
IAN Research is a groundbreaking project which is attempting to collect the largest ever data-set on individuals with ASDs. We invite you to participate!
By answering secure online questionnaires, and without ever leaving the comfort of home, parents of children with ASDs can provide crucial information about their child's diagnosis, behavior, environment, and services received. At the same time, adults with ASDs can share valuable information about their experiences, strengths, and needs. (At this point, there is little information about how adults with ASD in the United States are doing. The IAN Project hopes to change that.)
Researchers from throughout the world will work with the information participants provide to learn about the effect and interaction of factors such as genetics, environment, and treatment, as well as the current situation, well-being, and needs of those affected by ASD. IAN Research will also serve as a research registry, matching participants who give their permission with other local and national autism research projects studying ASDs.
The goal overall is to accelerate and expand autism spectrum disorder research.
Learn more about IAN Research:
IAN Special Projects: More Ways We (and You) Can Contribute to ASD Research
As the world's largest online autism research project, IAN has gathered information from thousands of individuals and families that researchers are using to explore many questions in autism. We have also been able to help researchers find participants for more than 300 studies so far. Because of our special role in ASD research, we have been able to partner with other organizations interested in the same thing: getting more autism research done faster. These special projects include:
IAN Questionnaires: The Basic Protocol and Special Questionnaires
Participants in IAN Research have the opportunity to respond to a number of online questionnaires and special surveys. Some of these are part of what we call the Basic IAN Protocol, which includes the Child with ASD Questionnaire, Mother and Father Medical History Questionnaires, and the Adult with ASD Questionnaires. From time to time, IAN also launches special questionnaires on specific topics.
Current IAN Special Questionnaires
Past IAN Special Questionnaires