Basic Family Information - Demographics

When joining the IAN Research Project, the first step a parent of a child with an Autism Spectrum Disorder (ASD) takes is completing a Consent Form.  The Consent Form explains the IAN Research Project in detail.  It is also where we gather basic demographic information from families.

The fields a parent is asked to fill in are:

1. Display Name
   This is the name a participant wants to appear on the entry screens in IAN Research to designate him or herself. It can be anything - a formal name, nickname, or made-up name.  (Note: it is not same as the Display Name used in the IAN Community as an anonymous identity for the Discussion Forums.)
2. First Name
3. Middle Name
4. Last Name with Suffix
5. Gender
6. Ethnicity
   Hispanic or Latino or Not Hispanic or Latino
7. Race
   Check all that apply: White, Black/African American, Native Hawaiian or Pacific Islander, Asian, American Indian or Alaskan Native, Other, and Unknown.
8. Street Address
9. City
10. State
11. Zipcode
12. Home Phone Number
13. When did you begin living at this address?
    Month and Year
14. Have you been diagnosed with an Autism Spectrum Disorder?
     Yes or No - tells us whether the parent him or herself has ever been diagnosed with an ASD.
15. If Yes to ASD question above, please select your first ASD diagnosis received from a professional (i.e. physician, psychologist, psychiatrist).
    Choices are: Autism or Autistic Disorder, Asperger's Syndrome, Pervasive Developmental Disorder - Not Otherwise Specified (PDD-NOS), Childhood Disintegrative Disorder (CDD), Pervasive Developmental Disorder (PDD), Autism Spectrum Disorder (ASD).

As a parent adds their children to their Family Profile, they will be asked to fill in a similar Consent Form (with demographic information) for each one.