IAN Research Questions
IAN Research is collecting the largest ever self- and parent/guardian-reported data set on people with autism spectrum disorder (ASD). By answering secure online questionnaires, and without leaving home, parents of children with ASDs provide crucial information about their child's diagnosis, behavior, environment, and services received. At the same time, adults with ASD share valuable information about their experiences, strengths, and needs. Researchers worldwide are working with the information participants provide to learn about the effect and interaction of factors such as genetics, environment, and treatment, as well as the current situation, well-being, and needs of those affected by ASD. IAN Research also serves as a research registry, matching participants who give their permission with other local and national autism research projects studying ASDs. The IAN Project is built upon a philosophy of openness, collaboration, and sharing with scientists and families alike. Individuals with ASD, their families, friends, and supporters can explorethe questions we have asked and the results.
To view the questionnaires and the current results, visit IAN Data Explorer. It is an interactive tool that allows you to look at how IAN Research participants have responded to individual questions on the IAN Research questionnaires. It displays charts and graphs based on current IAN Research data and is similar to interactive tools that show current stock values. The charts and graphs show responses to individual questions and do not attempt to summarize data on complex issues. Online help on IAN Data Explorer is also available.
(Researchers who wish to access the data for scientific purposes: please see For Researchers.)
IAN Research Questionnaires
Follow the links below to read about each of the IAN Research Questionnaires.
The Basic IAN Protocol
Child on the Autism Spectrum Questionnaires
- Child with an ASD
- Social Responsiveness Scale (SRS)
- Social Communication Questionnaire (SCQ)
- Treatment List and Questionnaire for Each Treatment
- Basic Family Information
- Mother Basic Medical History
- Father Basic Medical History
- Sibling without an ASD
Adult on the Autism Spectrum Questionnaires
- Adult with ASD Questionnaire - for independent adults with ASD
- Adult with ASD Questionnaire - for guardians of dependent adults with ASD