IAN Research Reports
A belief in the value of sharing...
All over the United States, mothers and fathers of children with an Autism Spectrum Disorder are sitting down in front of their computers to contribute their family's data to the IAN Project. At 3 in the morning from the family PC, or at lunchtime from the office... in one long session or in several smaller ones...they are answering the IAN questionnaires, adding their knowledge to that of thousands of other families. It is a way to tell their story.
In more traditional studies, research participants rarely hear what resulted from what they gave: their time, their passion, their effort. The IAN team believes that a research endeavor should be more of a two-way street. We will therefore be publishing Research Reports from time to time so that we can share with families and the entire autism community what we have learned so far.
As researchers from many fields begin to use the IAN data, applying it to hundreds of autism research questions, there will be even more to report! Even now, though, we have some preliminary findings based on the raw data flowing in that should be of great interest to our readers.
IAN Research Reports
- IAN Research Report #6 - June 2008
A detailed report on regression and developmental plateaus in children with ASD; of 5,702 children whose parents answered our questions about skill loss or stagnation, 54% experienced one of the other.
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IAN Research Report #5 - February 2008
Most frequently used treatments for ASD; special report on speech and language therapy; and an update to IAN's weight and height findings -- only
younger children with ASD tend to be taller , and only
older children with ASD tend to be heavier, than unaffected siblings.
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IAN Research Report #4 - December 2007
Use of one-on-one aides by state; classroom settings for children with ASD by grade (regular vs. special education from pre-school to high school); IAN height and weight data
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IAN Research Report #3 - September 2007
School settings (regular vs. special education); use of one-on-one aides; age at first parent concern vs. age at diagnosis; variation in frequency of parent depression by child's ASD diagnosis
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IAN Research Report #1 - May 2007
Children with ASD in IAN: diagnosis, age, regression, mental retardation, motor delays, and issues of mood and attention; families: issues of mood and attention and learning issues/speech delays
Special Topics
- Weight and Height Mini-Report
Data from IAN's Weight and Height Questionnaire - Children with ASD have different weight, height profile than typical peers
- Co-occuring Conditions Mini-Report
ADHD, Anxiety, Depression, and Bipolar Disorder in children with ASD and their family members
- Treatment Series Introduction
Introduction to Treatment Series - reports on treatments most frequently used by IAN families
- Treatment Report - Speech and Language Therapy
Description of speech and language therapy and report on its use by IAN families: targeted symptoms, cost, funding sources, results.
- Treatment Report - Occupational Therapy and Sensory Integration Therapies
Description of occupational and sensory integration therapies, and report on its use by IAN families: targeted symptoms, cost, funding sources, results
- Treatment Report - Medication
Description of medications used to treat issues associated with autism, and a report on how many children with ASD participating in IAN are using which type of medication.
