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Researchers Need You!

Date Last Revised: 
October 26, 2015
Date Published: 
January 16, 2008

photo illustration of spiral patternFeatured Studies

For Adults on the Spectrum

VANILLA Autism Trial
Location: Nationwide. Go to study website (www.VanillaAutismTrial.com) to find a site near you and learn how you can participate.
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Online Study of Sound Sensitivity for Parents of Children with ASD, ages 2-17

IAN Research is conducting an online survey focusing on auditory sensitivity and child safety. The study is open to families who have a child with ASD, ages 2 through 17, regardless of whether the child has an abnormal reaction to sound. If you are a current IAN Research participant, log in to your account to take the survey. Families new to IAN Research can learn more at IAN Research.

How Can You Participate?

The most efficient way to learn about the autism spectrum disorder research projects for which you qualify is to participate in IAN Research. As you may know, IAN Research is conducted online. Parents answer questions about themselves and their affected and unaffected children. Researchers throughout the world work with IAN to use this data to conduct their own research (with information removed that could be used to identify individuals). In addition, researchers throughout the United States work with IAN to find subjects for their studies. Based on the information that families and researchers provide, IAN matches the researchers' requirements (eligibility criteria/study eligibility) to the characteristics of willing IAN Research participants. When a family or family member qualifies for (matches) a research study, IAN contacts that family by email and that family has the option of contacting that research study. By participating in IAN Research, families have the opportunity to be matched with appropriate research projects as they emerge.

In addition to this matching service, IAN provides the listing that follows. It includes the research studies in the United States that are working with us. Autism Speaks also provides a list of research opportunities that may be of interest.

Please note that IAN is a resource linking the autism community and researchers. The studies listed are not endorsed by or performed under the auspices of the IAN Project at Kennedy Krieger Institute or the Johns Hopkins University Institutional Review Board. The information has been provided to us by the researchers, and although we try to keep it current, it is possible that some of the studies are no longer enrolling subjects.

Are You a Researcher?

IAN provides subject recruitment assistance to qualified research studies. Find out more about the services that IAN provides. Current IAN Research partners: if the recruitment status of your study has changed, please contact us.

Find a Study

To locate a U.S. study in your state or a nearby state, click on that state or peruse the list that follows. To find out more, click on that study's name. In addition to listing studies by state, we have included Internet studies, studies conducted by mail, and Canadian and U.S. nationwide studies. If you are interested in participating in a study, contact that study directly.

View studies recruiting adults

Find a U.S. Study by State

Alabama Alaska Arizona Arkansas
California Colorado Connecticut Delaware
Florida Georgia Hawaii Idaho
Illinois Indiana Iowa Kansas
Kentucky Louisiana Maine Maryland
Massachusetts Michigan Minnesota Mississippi
Missouri Montana Nebraska Nevada
New Hampshire New Jersey New Mexico New York
North Carolina North Dakota Ohio Oklahoma
Oregon Pennsylvania Rhode Island South Carolina
South Dakota Tennessee Texas Utah
Vermont Virginia Washington Washington, D.C.
West Virginia Wisconsin Wyoming Puerto Rico

Studies Recruiting Adults

Language and Communication Studies in Boston
Location: Boston, MA
Institution: Center for Autism Research Excellence (CARE) at Boston University
Principal Investigator: Dr. Helen Tager-Flusberg
Study Eligibility: Children and adolescents aged 4-21 years with an autism spectrum disorder (ASD). The studies focus on the brain and behavioral processes that are related to speech and language functioning in autism, with a particular emphasis on minimally verbal or nonverbal children and adolescents. There are three studies:

  • The Novel Language Intervention study is testing two interventions for minimally-verbal children with ASD. (Requires EEG & MRI.)
  • The Brain Systems for Language study is exploring ways in which language abilities and brain structures are connected in individuals with ASD at any level of language or with nonverbal ASD. (Requires EEG & MRI.)
  • The Profiles of Abilities study is working to characterize minimally-verbal children and adolescents with ASD. (Requires EEG.)

Contact: If you are interested in any of these studies, click on the following contact form Language and Communication Studies in Boston or email care@bu.edu
SR#1048 Recruitment Status: Recruiting

VANILLA Autism Trial
Location: Nationwide. Go to study website (www.VanillaAutismTrial.com) to find a site near you and learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Stanford University Autism and Developmental Disability Research Registry (PDF format)
Institution: Autism and Developmental Disability Clinic at Lucile Packard Children's Hospital of Stanford University
Location: Stanford, CA
Recruitment Status: Recruiting
Eligibility Criteria: Children and adults with Autism Spectrum Disorder ages 2 years and older

Understanding the Brain in Autism Spectrum Disorders (PDF format)
Institution: Boston University (coordinating institution)
Location: Boston, MA
Recruitment Status: Recruiting
Eligibility Criteria: Males with or without a diagnosis of Autism Spectrum Disorder, aged 14 through 20 years. Participants cannot have any metal (e.g., dental braces) in their body.

Internet-based Studies

Computer Adaptive Testing of Adaptive Behavior in Children and Youth with Autism Spectrum Disorders (PDF format)

Institution: Boston University
Location: Online study; within the United States
Recruitment Status: Recruiting
Eligibility Criteria: Parents/guardians of children who are diagnosed with an Autism Spectrum Disorder (ASD) and are 3-21 years old in the United States. We are especially interested in hearing from parents of: teenagers with an ASD, ages 13-17 years; young adults with an ASD, ages 18-21, who are transitioning to adulthood and independent living; and children and youth with ASD who use alternative methods of communication and/or are non-verbal.

Mail-based Studies

There are no active mail-based studies at this time.

Return to U.S. State Listing

Studies Recruiting Canadians

 

U.S. Studies (Nationwide)

Autism Spectrum Disorders Risk Alert (ASDRA) (PDF format)
Institution: Mt. Sinai School of Medicine
Location: New York, NY, and participant homes
Recruitment Status: Recruiting
Eligibility Criteria: Families with at least one child with autism between the ages of 12 and 30 months or where the presence of autism related risk indicators is suspected. Children between the ages of 12 and 30 months, who have an older sibling with ASD are also eligible.

North American Extended Family Study of Autism (PDF format)
Institution: The University of North Carolina, Chapel Hill, NC
Location: There is no geographic limitation on this study. For U.S. participants, the testing and interviews can be completed at your home or scheduled at a facility within your community. For Canadian residents, the testing and interviews can be completed at the Offord Centre for Child Studies at Chedoke Hospital, at your child(ren)'s school, and/or at your home.
Recruitment Status: Recruiting
Eligibility Criteria: Extended families with individuals who have a diagnosis of autism, Asperger's syndrome, or PDD in three or more nuclear families.

VANILLA Autism Trial
Location: Nationwide. Go to study website (www.VanillaAutismTrial.com) to find a site near you and learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Return to U.S. State Listing

U.S. Studies by State

Arizona

VANILLA Autism Trial
Location: Nationwide, including Phoenix, AZ. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Arkansas

Brain Development in Autism: Infant Siblings (PDF format)
Institution: Washington University School of Medicine
Location: Missouri (limited to residents of Missouri, Arkansas, Illinois, Indiana, Iowa, Kansas, and Ohio)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism and pregnant women with a child diagnosed with autism

California

VANILLA Autism Trial
Location: Nationwide, including Sacramento, CA, San Francisco, CA, and San Diego, CA. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Early Autism Risk Longitudinal Investigation (EARLI) Study (PDF format)
Institution: UC Davis and the UC Davis M.I.N.D. Institute
Location: Sacramento, CA
Recruitment Status: Recruiting
Eligibility Criteria: You are age 18 years or older; the biological mother of a child with an ASD diagnosis, such as autistic disorder, Asperger's syndrome, or pervasive developmental disorder-not otherwise specified (PDD-NOS); ≤ 20 weeks pregnant or may become pregnant in the future; and currently living within 2 hours of the Sacramento Valley. In addition, you are not a Kaiser Permanente member.(If you are, please contact our Northern California-Kaiser Permanente site.)

Risperidone Treatment in Children with ASD and High Levels of Repetitive Behaviors (PDF format)
Institution: University of California, Los Angeles - Autism Research Center
Location: Los Angeles, CA
Recruitment Status: Recruiting
Eligibility Criteria: Children with Autism, Aspergers or PDD, ages 8 through 16 years

Stanford University Autism and Developmental Disability Research Registry (PDF format)
Institution: Autism and Developmental Disability Clinic at Lucile Packard Children's Hospital of Stanford University
Location: Stanford, CA
Recruitment Status: Recruiting
Eligibility Criteria: Children and adults with Autism Spectrum Disorder ages 2 years and older

Colorado

VANILLA Autism Trial
Location: Nationwide, including Centennial, CO. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Measuring Brain Structure and Function in Autism (PDF format)
Institution: University of Colorado
Location: University of Colorado Anschutz Medical Campus in Aurora, CO
Recruitment Status: Recruiting
Eligibility Criteria: Families with at least one child with a diagnosis of an autism spectrum disorder, at least three participants per family. Participants must be 5-55 years old, have normal hearing, and should not currently be abusing drugs or alcohol.

Connecticut

VANILLA Autism Trial
Location: Nationwide, including including New Haven, CT. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Brain Development in Autism: Infant Siblings (PDF format)
Institution: The Children's Hospital of Philadelphia
Location: Philadelphia, PA (limited to residents of Pennsylvania, Connecticut, Delaware, Maine, Massachusetts, New Hampshire, New Jersey, New York, and Vermont)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism. If you have an older child who has been diagnosed with autism and are currently pregnant, your infant may be eligible for our study.

Delaware

Brain Development in Autism: Infant Siblings (PDF format)
Institution: The Children's Hospital of Philadelphia
Location: Philadelphia, PA (limited to residents of Pennsylvania, Connecticut, Delaware, Maine, Massachusetts, New Hampshire, New Jersey, New York, and Vermont)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism. If you have an older child who has been diagnosed with autism and are currently pregnant, your infant may be eligible for our study.

Return to U.S. State Listing

Florida

VANILLA Autism Trial
Location: Nationwide, including Delray Beach, FL, Oakland Park, FL and Orlando, FL. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Nutritional Intervention in Children with Autism Using Whey Protein (PDF format)
Institution: Nova Southeastern University
Location: Fort Lauderdale, FL
Recruitment Status: Recruiting
Eligibility Criteria: Children with Autism Spectrum Disorders ages 3-5 years; English and Spanish speaking families are welcome to participate

Georgia

VANILLA Autism Trial
Location: Nationwide, including Atlanta, GA. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Return to U.S. State Listing

Idaho

Study of Autism Genetics Exploration (SAGE) (PDF format)
Institution: Seattle Children's Hospital
Location: Seattle, WA
Recruitment Status: Recruiting
Eligibility Criteria: Children diagnosed with autism or suspected of having an autism diagnosis; ages 2 to 18 years

Return to U.S. State Listing

Illinois

Brain Development in Autism: Infant Siblings (PDF format)
Institution: Washington University School of Medicine
Location: Missouri (limited to residents of Missouri, Arkansas, Illinois, Indiana, Iowa, Kansas, and Ohio)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism and pregnant women with a child diagnosed with autism

Indiana

Brain Development in Autism: Infant Siblings (PDF format)
Institution: Washington University School of Medicine
Location: Missouri (limited to residents of Missouri, Arkansas, Illinois, Indiana, Iowa, Kansas, and Ohio)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism and pregnant women with a child diagnosed with autism

Iowa

Brain Development in Autism: Infant Siblings (PDF format)
Institution: Washington University School of Medicine
Location: Missouri (limited to residents of Missouri, Arkansas, Illinois, Indiana, Iowa, Kansas, and Ohio)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism and pregnant women with a child diagnosed with autism

Kansas

Brain Development in Autism: Infant Siblings (PDF format)
Institution: Washington University School of Medicine
Location: Missouri (limited to residents of Missouri, Arkansas, Illinois, Indiana, Iowa, Kansas, and Ohio)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism and pregnant women with a child diagnosed with autism

Maine

Brain Development in Autism: Infant Siblings (PDF format)
Institution: The Children's Hospital of Philadelphia
Location: Philadelphia, PA (limited to residents of Pennsylvania, Connecticut, Delaware, Maine, Massachusetts, New Hampshire, New Jersey, New York, and Vermont)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism. If you have an older child who has been diagnosed with autism and are currently pregnant, your infant may be eligible for our study.

Return to U.S. State Listing

Maryland

VANILLA Autism Trial
Location: Nationwide, including Baltimore, MD and Rockville, MD. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Behavioral and Neurobiological Investigation of Attention and Reasoning (PDF format)
Institution: KIDLAB, George Mason University
Location: Fairfax, VA
Recruitment Status: Recruiting
Study Eligibility: Children with High-Functioning Autism, Asperger's Syndrome, or PDD-NOS, as well as typically developing children, ages 9 through 17

The Brain and Genetic Basis of Restricted Interests (PDF format)
Institution: Center for Autism Spectrum Disorders at Children's National Medical Center
Location: Rockville, MD
Recruitment Status: Recruiting
Eligibility Criteria: Verbal children with an autism spectrum disorder, ages 6 through 17 years. Participants must not have a history of a seizure disorder.

Early Perceptual, Cognitive and Linguistic Skills in Infants at Risk for Autism (PDF format)
Institution: University of Maryland, College Park, MD
Location: University of Maryland, College Park, MD, and Center for Autism Spectrum Disorders at Children's National Medical Center, Rockville, MD
Recruitment Status: Recruiting
Eligibility Criteria: Infants (2-14 months) with a sibling or parent diagnosed with an Autism Spectrum Disorder

Functional Neuroimaging of Time Perception in Children with and without Autism (PDF format)
Institution: Kennedy Krieger Institute
Location: Baltimore, MD
Recruitment Status: Recruiting
Eligibility Criteria: Children with confirmed diagnosis of autism spectrum disorder, as well as typically-developing children with no family history of developmental disabilities or ADHD, ages 8 through 13 years.

Motor Skill Learning in Autism: Assessment & Treatment of Altered Patterns of Learning (PDF format)
Institution: Kennedy Krieger Institute
Location: Baltimore, MD
Recruitment Status: Recruiting
Eligibility Criteria: Children with High Functioning Autism or Asperger's Syndrome, as well as typically developing children, ages 8 through 12 years

 

Return to U.S. State Listing

Massachusetts

Language and Communication Studies in Boston
Location: Boston, MA
Institution: Center for Autism Research Excellence (CARE) at Boston University
Principal Investigator: Dr. Helen Tager-Flusberg
Study Eligibility: Children and adolescents aged 4-21 years with an autism spectrum disorder (ASD). The studies focus on the brain and behavioral processes that are related to speech and language functioning in autism, with a particular emphasis on minimally verbal or nonverbal children and adolescents. There are three studies:

  • The Novel Language Intervention study is testing two interventions for minimally-verbal children with ASD. (Requires EEG & MRI.)
  • The Brain Systems for Language study is exploring ways in which language abilities and brain structures are connected in individuals with ASD at any level of language or with nonverbal ASD. (Requires EEG & MRI.)
  • The Profiles of Abilities study is working to characterize minimally-verbal children and adolescents with ASD. (Requires EEG.)

Contact: If you are interested in any of these studies, click on the following contact form Language and Communication Studies in Boston or email care@bu.edu
SR#1048 Recruitment Status: Recruiting

VANILLA Autism Trial
Location: Nationwide, including Lexington, MA. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Brain Development in Autism: Infant Siblings (PDF format)
Institution: The Children's Hospital of Philadelphia
Location: Philadelphia, PA (limited to residents of Pennsylvania, Connecticut, Delaware, Maine, Massachusetts, New Hampshire, New Jersey, New York, and Vermont)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism. If you have an older child who has been diagnosed with autism and are currently pregnant, your infant may be eligible for our study.

Participant Database for Persons Interested in Autism Research Studies: Recruiting, Pre-Screening and Diagnostic Assessment (PDF format)

Institution: TRANSCEND Research Program, Harvard Medical School
Location: Charlestown, MA, and Lexington, MA
Recruitment Status: Recruiting
Eligibility Criteria: Infants/toddlers/children/teenagers with Autism Spectrum Disorders, infant siblings of toddlers/children/teenagers with ASD, as well as typically developing infants/toddlers/children/teenagers

Phenotypic and Genetic Factors in Autism Spectrum Disorders (PDF format)
Institution: Massachusetts General Hospital/LADDERS Clinic
Location: Boston, MA
Recruitment Status: Recruiting
Eligibility Criteria: Eligible participants in this study are individuals with a suspected ASD diagnosis (primarily children), their biological parents, and biological siblings. The minimum age for participation in this study is 24 months. There is no age maximum for study participation. English must be primary language spoken.

 

Return to U.S. State Listing

Michigan

Imitation Training (PDF format)
Institution: Michigan State University
Location: East Lansing MI
Recruitment Status: Recruiting
Eligibility Criteria: Children between the ages of 18 and 48 months at intake who have a diagnosis of an autistic spectrum disorder (autism, PDD-NOS); have difficulty with imitation; and who meet other inclusion criteria

Minnesota

VANILLA Autism Trial
Location: Nationwide, including Minneapolis, MN. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Missouri

Brain Development in Autism: Infant Siblings (PDF format)
Institution: Washington University School of Medicine
Location: Missouri (limited to residents of Missouri, Arkansas, Illinois, Indiana, Iowa, Kansas, and Ohio)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism and pregnant women with a child diagnosed with autism

Montana

Study of Autism Genetics Exploration (SAGE) (PDF format)
Institution: Seattle Children's Hospital
Location: Seattle, WA
Recruitment Status: Recruiting
Eligibility Criteria: Children diagnosed with autism or suspected of having an autism diagnosis; ages 2 to 18 years

Return to U.S. State Listing

New Hampshire

Language and Communication Studies in Boston
Location: Boston, MA
Institution: Center for Autism Research Excellence (CARE) at Boston University
Principal Investigator: Dr. Helen Tager-Flusberg
Study Eligibility: Children and adolescents aged 4-21 years with an autism spectrum disorder (ASD). The studies focus on the brain and behavioral processes that are related to speech and language functioning in autism, with a particular emphasis on minimally verbal or nonverbal children and adolescents. There are three studies:

  • The Novel Language Intervention study is testing two interventions for minimally-verbal children with ASD. (Requires EEG & MRI.)
  • The Brain Systems for Language study is exploring ways in which language abilities and brain structures are connected in individuals with ASD at any level of language or with nonverbal ASD. (Requires EEG & MRI.)
  • The Profiles of Abilities study is working to characterize minimally-verbal children and adolescents with ASD. (Requires EEG.)

Contact: If you are interested in any of these studies, click on the following contact form Language and Communication Studies in Boston or email care@bu.edu
SR#1048 Recruitment Status: Recruiting

Brain Development in Autism: Infant Siblings (PDF format)
Institution: The Children's Hospital of Philadelphia
Location: Philadelphia, PA (limited to residents of Pennsylvania, Connecticut, Delaware, Maine, Massachusetts, New Hampshire, New Jersey, New York, and Vermont)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism. If you have an older child who has been diagnosed with autism and are currently pregnant, your infant may be eligible for our study.

New Jersey

Brain Development in Autism: Infant Siblings (PDF format)
Institution: The Children's Hospital of Philadelphia
Location: Philadelphia, PA (limited to residents of Pennsylvania, Connecticut, Delaware, Maine, Massachusetts, New Hampshire, New Jersey, New York, and Vermont)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism. If you have an older child who has been diagnosed with autism and are currently pregnant, your infant may be eligible for our study.

Early Autism Risk Longitudinal Investigation (EARLI) Study (PDF format)
Institution: Drexel University and The Children's Hospital of Philadelphia (CHOP)
Location: Philadelphia, PA
Recruitment Status: Recruiting
Eligibility Criteria: You are the biological mother of a child with an ASD diagnosis, such as autistic disorder, Asperger's syndrome, or pervasive developmental disorder-not otherwise specified (PDD-NOS); you are no more than 20 weeks pregnant or may become pregnant in the future; you are currently living in Philadelphia, Bucks, Chester, Delaware, or Montgomery County in Pennsylvania, or Atlantic, Burlington, Camden, Gloucester, Mercer, or Salem County in New Jersey.

Genetic Components of Autism Spectrum Disorders (PDF format)
Institution: Rutgers University
Location: Your home within 80 miles of Piscataway, NJ
Recruitment Status: Recruiting
Eligibility Criteria: Families with at least one individual diagnosed with autism who is older than 3 years of age; at least five immediate family members (e.g., father or mother) or second degree relatives (e.g., aunts, uncles, grandparents) who are interested in participating; at least one individual who has a history of language/learning problems (either in the immediate family or second degree relatives) or another individual who is on the autism spectrum (i.e., PDD, Asperger's Disorder); English is the primary language spoken in the home.

Return to U.S. State Listing

New York

VANILLA Autism Trial
Location: Nationwide, including Bronx, NY, New York, NY and Orangeburg, NY. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Autism Spectrum Disorders Risk Alert (ASDRA) (PDF format)
Institution: Mt. Sinai School of Medicine
Location: New York, NY, and participant homes
Recruitment Status: Recruiting
Eligibility Criteria: Families with at least one child with autism between the ages of 12 and 30 months or where the presence of autism related risk indicators is suspected. Children between the ages of 12 and 30 months, who have an older sibling with ASD are also eligible.

Brain Development in Autism: Infant Siblings (PDF format)
Institution: The Children's Hospital of Philadelphia
Location: Philadelphia, PA (limited to residents of Pennsylvania, Connecticut, Delaware, Maine, Massachusetts, New Hampshire, New Jersey, New York, and Vermont)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism. If you have an older child who has been diagnosed with autism and are currently pregnant, your infant may be eligible for our study.

Early Development of Brain Connectivity in Autism (PDF format)
Institution: NYU Child Study Center, Phyllis Green and Randolph Cowen Institute for Pediatric Neuroscience
Location: New York, NY
Recruitment Status: Recruiting
Eligibility Criteria: Children between 3 and 5 years of age with a diagnosis (or suspected diagnosis) of an autism spectrum disorder. Exclusions, such as medical conditions, and scores on diagnostic testing also apply. Please contact us directly for any questions regarding exclusions.

Taste, Smell and Feeding Behavior in Autism: A Quantitative Traits Study (PDF format)
Institution: University of Rochester
Location: Rochester, NY
Recruitment Status: Recruiting
Eligibility Criteria: Families who have at least one child with an autism spectrum disorder (ages 11-17), at least one child without an autism spectrum disorder (ages 11-17), and both biological parents who are interested in participating.

Return to U.S. State Listing

North Carolina

VANILLA Autism Trial
Location: Nationwide, including Chapel Hill, NC. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Brain Development in Infants at High Risk for Autism (PDF format)
Institution: University of North Carolina-Chapel Hill
Location: Chapel Hill, NC
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism

North American Extended Family Study of Autism (PDF format)
Institution: The University of North Carolina, Chapel Hill, NC
Location: There is no geographic limitation on this study. For U.S. participants, the testing and interviews can be completed at your home or scheduled at a facility within your community. For Canadian residents, the testing and interviews can be completed at the Offord Centre for Child Studies at Chedoke Hospital, at your child(ren)'s school, and/or at your home.
Recruitment Status: Recruiting
Eligibility Criteria: Extended families with individuals who have a diagnosis of autism, Asperger's syndrome, or PDD in three or more nuclear families

Return to U.S. State Listing

Ohio

VANILLA Autism Trial
Location: Nationwide, including Cleveland, OH and Cincinnati, OH. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Brain Development in Autism: Infant Siblings (PDF format)
Institution: Washington University School of Medicine
Location: Missouri (limited to residents of Missouri, Arkansas, Illinois, Indiana, Iowa, Kansas, and Ohio)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism and pregnant women with a child diagnosed with autism

Oklahoma

Oregon

Study of Autism Genetics Exploration (SAGE) (PDF format)
Institution: Seattle Children's Hospital
Location: Seattle, WA
Recruitment Status: Recruiting
Eligibility Criteria: Children diagnosed with autism or suspected of having an autism diagnosis; ages 2 to 18 years

Return to U.S. State Listing

Pennsylvania

VANILLA Autism Trial
Location: Nationwide, including Pittsburgh, PA. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Brain Development in Autism: Infant Siblings (PDF format)
Institution: The Children's Hospital of Philadelphia
Location: Philadelphia, PA (limited to residents of Pennsylvania, Connecticut, Delaware, Maine, Massachusetts, New Hampshire, New Jersey, New York, and Vermont)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism. If you have an older child who has been diagnosed with autism and are currently pregnant, your infant may be eligible for our study.

Early Autism Risk Longitudinal Investigation (EARLI) Study (PDF format)
Institution: Drexel University and The Children's Hospital of Philadelphia (CHOP)
Location: Philadelphia, PA
Recruitment Status: Recruiting
Eligibility Criteria: You are the biological mother of a child with an ASD diagnosis, such as autistic disorder, Asperger's syndrome, or pervasive developmental disorder-not otherwise specified (PDD-NOS); you are no more than 20 weeks pregnant or may become pregnant in the future; you are currently living in Philadelphia, Bucks, Chester, Delaware, or Montgomery County in Pennsylvania, or Atlantic, Burlington, Camden, Gloucester, Mercer, or Salem County in New Jersey.

Early Identification of Autism: A Prospective Study (Baby Sib) (PDF format)
Institution: University of Pittsburgh
Location: Pittsburgh, PA
Recruitment Status: Recruiting
Eligibility Criteria: Families with an infant aged 5 months or younger and at least one older child with an Autism Spectrum Disorder (ASD)

Pitt Early Autism Study (P.E.A.S.) (PDF format)
Institution: University of Pittsburgh
Location: Pittsburgh, PA
Recruitment Status: Recruiting
Eligibility Criteria: Infants between the ages of six and sixteen months with an older sibling diagnosed with or without Autism Spectrum Disorders

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Rhode Island

Language and Communication Studies in Boston
Location: Boston, MA
Institution: Center for Autism Research Excellence (CARE) at Boston University
Principal Investigator: Dr. Helen Tager-Flusberg
Study Eligibility: Children and adolescents aged 4-21 years with an autism spectrum disorder (ASD). The studies focus on the brain and behavioral processes that are related to speech and language functioning in autism, with a particular emphasis on minimally verbal or nonverbal children and adolescents. There are three studies:

  • The Novel Language Intervention study is testing two interventions for minimally-verbal children with ASD. (Requires EEG & MRI.)
  • The Brain Systems for Language study is exploring ways in which language abilities and brain structures are connected in individuals with ASD at any level of language or with nonverbal ASD. (Requires EEG & MRI.)
  • The Profiles of Abilities study is working to characterize minimally-verbal children and adolescents with ASD. (Requires EEG.)

Contact: If you are interested in any of these studies, click on the following contact form Language and Communication Studies in Boston or email care@bu.edu
SR#1048 Recruitment Status: Recruiting

Tennessee

VANILLA Autism Trial
Location: Nationwide, including Nashville, TN. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Texas

VANILLA Autism Trial
Location: Nationwide, including San Antonio, TX. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Capturing the Attentional Learning of Children from a First Person's View (PDF format)
Institution: University of Houston Cognitive Development Lab
Location: Houston, TX
Recruitment Status: Recruiting
Eligibility Criteria: Children with Autism Spectrum Disorder, suspected autism, or speech delay, as well as deaf children and typically developing children, ages 6 months through 5 years

Vermont

Brain Development in Autism: Infant Siblings (PDF format)
Institution: The Children's Hospital of Philadelphia
Location: Philadelphia, PA (limited to residents of Pennsylvania, Connecticut, Delaware, Maine, Massachusetts, New Hampshire, New Jersey, New York, and Vermont)
Recruitment Status: Recruiting
Eligibility Criteria: Infants under 12 months of age with an older sibling diagnosed with autism. If you have an older child who has been diagnosed with autism and are currently pregnant, your infant may be eligible for our study.

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Virginia

Behavioral and Neurobiological Investigation of Attention and Reasoning (PDF format)
Institution: KIDLAB, George Mason University
Location: Fairfax, VA
Recruitment Status: Recruiting
Eligibility Criteria: Children with High-Functioning Autism, Asperger's Syndrome, or PDD-NOS, as well as typically developing children, ages 9 through 17

Washington

VANILLA Autism Trial
Location: Nationwide, including Bellevue, WA, Bothell, WA and Seattle, WA. Please go to study website (www.VanillaAutismTrial.com) to learn how you can participate.
Recruitment Status: Recruiting
Study Eligibility: Adult males aged 18 to 45 years with an autism spectrum disorder. Participants should have an information provider (spouse, family member, friend) who is willing to accompany them to the selected study site to share their observations about any changes in the participant’s social behavior and communication.

Study of Autism Genetics Exploration (SAGE) (PDF format)
Institution: Seattle Children's Hospital
Location: Seattle, WA
Recruitment Status: Recruiting
Eligibility Criteria: Children diagnosed with autism or suspected of having an autism diagnosis; ages 2 to 18 years

Washington, D.C.

Behavioral and Neurobiological Investigation of Attention and Reasoning (PDF format)
Institution: KIDLAB, George Mason University
Location: Fairfax, VA
Recruitment Status: Recruiting
Study Eligibility: Children with High-Functioning Autism, Asperger's Syndrome, or PDD-NOS, as well as typically developing children, ages 9 through 17

The Brain and Genetic Basis of Restricted Interests (PDF format)
Institution: Center for Autism Spectrum Disorders at Children's National Medical Center
Location: Rockville, MD
Recruitment Status: Recruiting
Eligibility Criteria: Verbal children with an autism spectrum disorder, ages 6 through 17 years. Participants must not have a history of a seizure disorder.

Early Perceptual, Cognitive and Linguistic Skills in Infants at Risk for Autism (PDF format)
Institution: University of Maryland, College Park, MD
Location: University of Maryland, College Park, MD, and Center for Autism Spectrum Disorders at Children's National Medical Center, Rockville, MD
Recruitment Status: Recruiting
Eligibility Criteria: Infants (2-14 months) with a sibling or parent diagnosed with an Autism Spectrum Disorder

Functional Neuroimaging of Time Perception in Children with and without Autism (PDF format)
Institution: Kennedy Krieger Institute
Location: Baltimore, MD
Recruitment Status: Recruiting
Eligibility Criteria: Children with confirmed diagnosis of autism spectrum disorder, as well as typically-developing children with no family history of developmental disabilities or ADHD, ages 8 through 13 years

Motor Skill Learning in Autism: Assessment & Treatment of Altered Patterns of Learning (PDF format)
Institution: Kennedy Krieger Institute
Location: Baltimore, MD
Recruitment Status: Recruiting
Eligibility Criteria: Children with High Functioning Autism or Asperger's Syndrome, as well as typically developing children, ages 8 through 12 years

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