Simons Simplex Families: Welcome to IAN, Your New Autism Research Home
Date First Published: April 14, 2011
At autism centers across North America you have shared your children’s behavioral profiles, developmental histories, and diagnoses. You have also contributed genetic samples to create a vital resource for autism science. Now that the initial family-recruitment phase of the project is complete, we are inviting you to join the Simons Simplex Community @ Interactive Autism Network (SSC@IAN) – the project’s new online home and continuation.
Researchers hope to continue advancing knowledge based on the information SSC families have provided, and to continue learning from your experiences and input. Through SSC@IAN, you will find out about new studies and surveys specifically for Simons Simplex families like your own. You will also discover what researchers are learning from the information you have contributed so far.
When your family joins SSC@IAN:
Through SSC@IAN, autism researchers will be able to stay in touch with you and other Simons Simplex families as children grow and situations change. There is a possibility that the study may become longitudinal, which means it will become even more valuable because information is collected at several points in time instead of just once.
U.S. Families: If you have already joined, welcome! If you still need to join, or would like more information before deciding, click here.
Canadian Families: Click here to learn more.
Your New Research Coordinator
Tara Zandi is your SSC@IAN Research Coordinator. Tara is a resource for you, and we hope you will not hesitate to call or email her. She can assist with SSC@IAN registration, answer any of your questions, and help in any way you need. You can contact Tara at 443-923-4153 or SSC@IANproject.org.
Tara received a Master's degree in Clinical Psychology from Assumption College and a Master's degree in Social Work from the University of Maryland. She has worked with children on the autism spectrum, and became part of the IAN team specifically to work with Simons Simplex families.
Articles of Interest
Research Made Possible by Simons Simplex Families
Researchers are studying a variety of questions using the Simons Simplex data. This is autism research made possible by you. Read about the latest findings here.
Simons Simplex Families Share Their Stories
Learn about the experiences and insights of families who participated in the Simons Simplex Collection project.
Simons Simplex News
On 21 October, 2011, more than 100 investigators and clinicians who had worked together on the Simons Simplex Collection (SSC) gathered in New York City to celebrate this landmark achievement in autism research. Read more.
Have questions about SSC@IAN? Call or email your SSC@IAN Research Coordinator, Tara Zandi, at 443-923-4153 or SSC@IANproject.org.