Messages posted by: bssage

Connie

Your link is broken. I am getting close to this event also. I think our problem is going to be more about being touched and not wanting to have the things in place to manage menstruation issues. My wife will be in charge (thank god) but she is worrying about what to do. There is talk of taking steps that would keep it from occurring. Need help or links please.

Thanks
Chloe's Daddy

I have used all of those and they all have things to offer. I would say though I have gotten the most usefull info from the internet and conferences/classes I have attended.

While many of the conferences/classes are for educators. Many allow parents to Audit (Free or Reduced cost) or attend the event without being given college credit. And while many of the actual events are a replay of things I know or have heard. I get a lot out of the breaks when you have a chance to discuss with other parents and professionals attending. Also this site is a good place to get impartial feedback about the things I learn at the events.

Just thought I should update. Still having success. Alarms have not gone off in months.

Thinking about trying similar method for other bothersome dangerous issues.

She has taken to breaking free in parking lots and getting into car's based on the color of the car and if it is unlocked. Occupied or not makes no difference. Thinking about getting a unpleasant noise maker to deter this behavior.

Looking into this. Very expensive. I have been doing some research and it sounds promising but would like to hear from my IAN Peeps. Anyone have any experience with this??

thanks
Chloe's Daddy

I decided to start a new thread as the other one is very old. I thought I would share what I have had the most (yes MOST) success with.

During my quest to secure the house I picked up some magnetic door alarms in the clearance isle of a drug store. One magnet attaches to the door the other to the frame. Trial and error showed the need to be placed at the very top of the door not the sides.

This particular has such a loud shrill alarm. And as I am sure most of you know my Autistic daughter (probably yours)is sensitive to loud noises. The alarm has gone off when she first tried to escape and several time's when we forgot to turn it off.

It has become an extremely effective deterrent. Not only does she not try to open the doors. She waits after all the locks are off for us to shut down the alarm before she even attempts to open. Even then she covers her hears as we open the door for her.

Perfect? No I have caught her on a chair trying to shut it off early after I installed. Better than the deadbolt, chain lock, latch lock I installed? completely.

Ultimately I would like to have the wristwatch style geo fence alarm. Currently I have been unable to get her to wear anything similar.

What else have we done. We notified both the police and sheriff what the issue was asked if they had training with Autistic people and asked them to leave notice with their dispatchers so they would know who to call if their was a report of a little girl walking alone on the road in our neighborhood. Thankfully we have not needed to use any of those resources since we installed the alarms.

Just thought I would share.

Kitana2

I recommend you search Wrightslaw.

They have a class, very inexpensive if you are auditing (not a teacher or care giver). They will give you the tools you need to protect your child's education. I took the program even though I don't need it at this time. Our school is working well with us.

I don't have any vested interest in Wrightslaw other than I attended the class and it sounds like you need the information they share.

What I believe is that as long as you live in their school district they are on the hook to provide you son with a Free and Reasonable education. I believe its a federal law. If that involves a tutor in your home or them paying for travel expenses it does not matter. They have to accommodate your son.

Its been a year since I had the class so I dont want to misquote anything. Its a short (four hour) class. I think it was under 200 bucks and is all about The legal responsibilities of the state & what resources are available to you,the process for getting them.

Hope that helps
bssage

Dear Damiens mom I keep rereading your post. I really wish I had some profound insite to share.

I only wanted to say that a lot of people like myself will read your post and feel your pain. Its not empathy, we relate. What helps me a little is sharing the little successes we have. Not much but all I have

bssage

mentioned By a Autism therapist acquaintance that we should look into listening therapy. I have not found much on the web. Most refer back to "active listening", Metranome", or "music" therapy. Am I missing something?? and anyone have experience?

We have completed a evaluation to start music therapy for my 8 yr old daughter.

Does anyone have experience with this type of therapy?

Is anyone familiar with this? I see its is sometimes recommended for autism. Any research?

I am currently looking at amber alert gps. But have been unable to find consumer based reviews. Anybody please. Also is there any way any of this can be a "covered expense" The high end package has a neat feature to use it as a listening device. The only reason I would use that would be see if a caregiver is acting appropriatly in our absence. Looking for feedback other autistic parents.

clanhorton wrote:

We finally found a developmental pediatrician who performed a complete work up on my eight year old virtually non verbal Autistic son. Some of the lab came back denied. My insurance company sent me the forms to appeal there denial but I have no experience in this ? has anyone else ran into this problem and how did you handle it?

We ran into the same thing. Hopefully with the current insurance legislation being past in many states this practice will stop. We had to get Chloe reevaluated with a diagnoses of mildly retarded to get the medical assistance we needed. Its a bummer but was the only way without paying the entire medical bills out of pocket.

I am investigating what is available. It looks like options are either GPS or RF(radio sig) They both have advantages and disadvantages. As the weather gets warmer my daughter likes to escape. We are kinda country with 3 acres a pond and a busy road. She likes to leave and go toward the road or pond (of course)

My concerns are how she will deal with a bracelet or tag. She likes to play in water so of course that would be a issue. Battery life. and reliability.

looks like the GPS will provide a map w/location not sure how the alarm settings work but of course more expensive.

The RF is cheaper with directional indicator and appears to have several preset distances to alarm. But its range is limited. And the reviews show issues with reliability on some models.

It wont matter what we get if we cant get her to keep it on. Or the batteries keep dying.

Does anyone have any first hand experience with any of these devices. I would appreciate any imput.

Bryan

Awhile back I read an article about building a new school in the Chicago area that was to be designed around the sensitivities of Autistic kids. I have heard no more since I read the original article and have been unable to find it again.

If memory serves me correctly they were going to use alternative lighting instead of florescent, higher windows so the kids could not see the activity on the street, Strategically place sound dampening materials. Among other things.

Am I freaking out?? Did this happen and if so are there any follow up info on the effect of the improvements?? And if there was a measured benefit shouldn't that be presented to other special needs classrooms?

Thanks a lot. It just gets so frustrating at times. Chloe was making major improvements and in the last week she has lost ground on behavour issues. She is throwing more, hitting more, refuses to wear anything other than candy cane pajama pants and completely melts down. Arrgggggggggg. Hard on the whole family. And at times I feel like I am neglecting my 9 yr old boy because his sister requires so much more.

It will be nice to have a place to vent where people understand.

Our Doctor sent us the state for diagnosis. They sent us to the university.

They ran our daughter through 5 or 6 different disciplines I.E. psychology, Med, Edu, ect... Spent a entire day (in public with a Autistic kid) there plus travel, lodging, away from work, taking care of our other kid. Our daughter melted down the ENTIRE night at the hotel. To tell us something we already knew.

When it was final they told us more of what we already knew. The only "Value Added" part was having the diagnosis in hand.

They absolutely did not have anything to add to what we knew. And in fact due to our research we were more current than they were. "Oh we have not heard of that." Give me something for my money.

We are not just a footnote for your next book.

As you can tell I'm a little bitter about the whole process