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        <![CDATA[Latest posts for the topic "Girls with Autism" recent IAN discussions]]>
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		<description><![CDATA[Latest messages posted in the topic "Girls with Autism"]]></description>
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				<title>Girls with Autism</title>
				<description><![CDATA[ The New York Times had an excellent article a few days ago about girls and Autism.  Basically, this is one area that needs a ton of research and has kind of been overlooked.  This is mostly because as everyone knows Autism effects boys more often than girls.  However,it seems as though when girls get it, it's pretty bad. As the mother of an Autistic little girl, I feel that more focus needs to be given to this population of children.  According to the article I referred to, the effects of certain medications that are commonly used with Autistic children have not even been studied on girls.  :shock: I find that quite disturbing to say the least.  Please consider having a special section or set of questions just for the parents of girls on the spectrum.  Thank you. Thank you. ]]></description>
				<guid isPermaLink="true">http://kki.qorvis.com/forum/posts/list/99.page#445</guid>
				<link>http://kki.qorvis.com/forum/posts/list/99.page#445</link>
				<pubDate><![CDATA[Thu, August 9, 2007]]> GMT</pubDate>
				<author><![CDATA[ Rebsmom]]></author>
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				<title>Re:Girls with Autism</title>
				<description><![CDATA[ Rebsmom, you are absolutely right that far too little attention has been focused on girls on the spectrum.  One way we hope IAN will make a difference is by helping researchers <i>find </i>girls.  (Because it's even harder to recruit enough girls for a research project than boys, few projects focus on girls.)

Whenever I have the opportunity to speak with researchers, I will also stress that parents in the IAN Community want more done to help us understand and help girls with ASDs.]]></description>
				<guid isPermaLink="true">http://kki.qorvis.com/forum/posts/list/99.page#449</guid>
				<link>http://kki.qorvis.com/forum/posts/list/99.page#449</link>
				<pubDate><![CDATA[Fri, August 10, 2007]]> GMT</pubDate>
				<author><![CDATA[ Connie (IAN Staff)]]></author>
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				<title>Re:Girls with Autism</title>
				<description><![CDATA[ I see that the original post was in 2007.  What has been done since?  Who are the leading researchers on girls with autism?  I have a 6 year old girl with autism.  I would love to learn about a forum for parents of autistic girls.]]></description>
				<guid isPermaLink="true">http://kki.qorvis.com/forum/posts/list/99.page#1404</guid>
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				<pubDate><![CDATA[Wed, February 11, 2009]]> GMT</pubDate>
				<author><![CDATA[ Tbmeyers]]></author>
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				<title>Re:Girls with Autism</title>
				<description><![CDATA[ Many in the autism community actually question the rates of mild autism in girls because of what we expect from girls compared to boys. 

We expect girls to be more
1.) Quiet 
2.) Introverted 
3.) Mannered 

We expect boys to be 
1.) Loud
2.) Extroverted 
3.) Less mannered 

So we need to research this to see if doctors are even catching the autism in girls. Also we need to see if therapy to help autistic people communicate and function more efficiently work equally in both sexes. 



]]></description>
				<guid isPermaLink="true">http://kki.qorvis.com/forum/posts/list/99.page#1405</guid>
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				<pubDate><![CDATA[Wed, February 11, 2009]]> GMT</pubDate>
				<author><![CDATA[ Blackstarzero]]></author>
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				<title>Re:Girls with Autism</title>
				<description><![CDATA[ Hi Tbmeyers, and welcome to IAN. :)

You were asking about current research on girls. What I have noticed is that the medical/scientific research has little focused on girls specifically at this point - probably because it is so difficult for them to recruit enough girls to study. (This is something IAN hopes to help remedy.)

Those writing about girls and autism tend to be those doing clinical work and reporting on their experience with girls on the spectrum. Such researcher-clinicians include Tony Attwood, Brenda Myles, and Shana Nichols.

A recent news story, "Underdiagnosed Girls with Autism Struggle to Fit In," mentions two of these three: http://abcnews.go.com/Nightline/Story?id=4177353&page=1

Tony Attwood and Shana Nichols have both authored books on the topic.

One thing that is interesting to note: many researchers say that girls "get" autism less frequently than boys, but that when they do, it is more severe. This finding stands in contrast to what others are saying: higher functioning girls are being "missed" because (as Blackstarzero pointed out) their tendency to be quiet and better behaved means they are less likely to be taken for an evaluation and less likely to be diagnosed when they do get one. (Boys with meltdowns who may have gotten suspended from school, on the other hand, are much more likely to get taken for an evaluation.)

A major question for researchers is: are we indeed undercounting girls with autism spectrum disorders? If so, what do these "higher functioning and missed" girls look like and what do they "have"? For example, the ratio of boys to girls in autism is about 4:1, but in Asperger's it is more like 10:1. So...might it be the Asperger's girls who are missing? 

This intersects with a larger question: if you are able to "fake" social skills enough to function...do you have ASD? How <b>well </b>do you have to function before you are considered to have an ASD? When does one become "eccentric" or "geeky and socially anxious" instead of "ASD"? This is an important question, because it impacts how we count and who gets help. If girls do present as better able to "fake it" (or at least as better able to sit quietly and not be noticed) the answers to these questions also impact how many girls will be considered ASD.

One last note: there does appear to be a Yahoo group of some kind for girls with autism: http://health.groups.yahoo.com/group/Autism_in_Girls/

I do not know anything about this group, but their existence points out that people seeking support regarding this issue are organizing themselves on the web. I do know from speaking with parents of girls with ASD that it can be very difficult to be in the minority even within the ASD community.

]]></description>
				<guid isPermaLink="true">http://kki.qorvis.com/forum/posts/list/99.page#1411</guid>
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				<pubDate><![CDATA[Thu, February 12, 2009]]> GMT</pubDate>
				<author><![CDATA[ Connie (IAN Staff)]]></author>
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				<title>Re:Girls with Autism</title>
				<description><![CDATA[ According to all I've read about autism, girls have a much lower incidence of autism than boys. I think this may have to do with the unique female propensity for social interaction/initiative.

According also to my said reading, many with autism, of both genders, has a studied avoidance of using the personal pronoun ('I','me','mine', etc.). This is the key, at least for me, to autism, because my own as-yet-merely self-diagnosed autism (no official examination yet), seems to be centrally about a lack of social autonomy: I have a distressingly insufficient supply of it.

I'm quite socially intelligent in many ways, including general linguistics, so that no one notices what I lack. As a child (pre-puberty) I was almost abnoxiously out-going, but in a manner that I see  today as having been very limited and narrow in motivation and outlook.

Much is missing in my social intelligence/propensity/interest. I've been put through trauma after trauma before I began to suspect, from my readings in the subject---thanks to my sister's initiative/curiosity about nearly every subject, social and otherwise, and thus the books she brought home from the library---that I have the disability called autism (I found myself relating to every one of the persons whose stories of their own autism was written about in those books).

These traumas (some of which still continue on a regular basis) were the result of the fact that no one (at least not neurotypicals) sees what and who I am on the inside, my thinking, motivations, and lacks thereof. All they see is the 'superman' (flaming Irish stamina, a lot like Myth Buster's Adam Savage).

In short, every human being on the planet is like a god to me, and who violently change my reality a hundred times a minute without even knowing it. Like social interaction is a stoplight, and the human mind and psyche are invisible cars: I'm constantly being run down in both lanes because the drivers in the cars on the opposite side of the intersection assume that a change to green means that, like themselves, I've already zoomed through and on down the road. Talking with someone, especially if I can see and hear them, is like getting hit with a huge truck every two seconds, and my actual attempts at any social initiation is like running head-first into a brick wall.

Daniel Pech]]></description>
				<guid isPermaLink="true">http://kki.qorvis.com/forum/posts/list/99.page#1453</guid>
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				<pubDate><![CDATA[Thu, March 5, 2009]]> GMT</pubDate>
				<author><![CDATA[ Gemini]]></author>
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				<title>Re:Girls with Autism</title>
				<description><![CDATA[ Hi Gemini. :)

I have been speaking with a lot of adults on the autism spectrum lately because we are working on the IAN "Adult with ASD" surveys. What you said in your post reminded me of what so many of them have said: They wish neurotypicals (NTs) understood them better, and could appreciate how hard navigating the social world is for them. You are certainly not alone in feeling that way.

As I talk to educators, therapists, and others who work with people on the autism spectrum, many of them say one of the most helpful things of all is to help the NTs in every context understand and support the person with an autism spectrum disorder. (That could be educating and training peers, or co-workers, or the people at church, or whatever.) The way people view, and interpret, and respond to a person with ASD's behavior is so important to that person's success and even just their feeling of being OK, of being accepted. People with ASD work really hard to curb behaviors that aren't socially acceptable, but they also need others to appreciate where they are coming from, and to not respond with derision if they DO do something that looks strange to the NTs, like rock or zone out. ]]></description>
				<guid isPermaLink="true">http://kki.qorvis.com/forum/posts/list/99.page#1454</guid>
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				<pubDate><![CDATA[Fri, March 6, 2009]]> GMT</pubDate>
				<author><![CDATA[ Connie (IAN Staff)]]></author>
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				<title>Re:Girls with Autism</title>
				<description><![CDATA[ Hi Connie.

One way of showing to an NT what lack of autonomy is sometimes like is to make themn count a series of objects while someone is in their ear speaking a 'fake count' in order to throw off their own counting. This is a common childhood prank.

When the floor feels like it is forcing you to walk in a way that is very...inefficient, you are lacking in dynamic bipedal autonomy. Autism, I think, may be a lack of general dynamic autonomy. And, ironically, this may produce the exact opposite of autistic behavior. I should know.

The term 'autism' may be the most ironic term in existence: it suggests that the person with the disability has an overwhelming abundance of autonomy. This is exactly not the case---unless one is talking about merely static autonomy. But, life requires dynamic autonomy, because of a dynamic environment. Even the floor (per gravity, and per one's own mass, joints, and musculature), poses a dynamic environment. Worse, still, is the dynamic social environment.

I do just fine in writing, because I have complete control of it (as long as no one is presently, or otherwise vicariously, interfering with me and my writing, or as long as I do not get caught up in replying to another's written responses to mine). I am very good at general social response. Nevertheless a, live, and fully give-and-take, social environment is like being forced to waltz, and my shoes are several sizes too small (the shoes DO 'fit', in terms of being able to contain my feet, but, if 'the shoe fits' in this sense alone, yet I VERY easily feel imposed upon by others to accept that this is what a proper shoe is supposed to feel like, and that others do not need to care that I am being made a cripple by their expectations of me).

I can 'dance' this social 'dance' all too well when the focus is on the other person, what the other person wants and needs and perfers. But, this is also where my 'autism' comes in: I have a very, very vague sense of myself as a differentiated person--- and then some. In short, I appear not to be autistic at all. So, I was assumed, by very selfish and militaristic people, that I was some kind of superman. I RESPONDED so well to what OTHERS wanted from me FOR THEMSELVES.

The low incidence of female autism, if my information is correct, may be explained in terms of this disability which I suspect underlies all autistic behavior: lack of dynamic social autonomy. (This theory comes to you courtesy of a lifetime of increasing trauma to me, and abuse of me by others,  resulting in the current complete ruination of my health, my general life, and what little used to exist of my socio-economic capacity. I became homeless for a time, and still am almost unable to cope where I now live because other sentient life forms live there as well.)]]></description>
				<guid isPermaLink="true">http://kki.qorvis.com/forum/posts/list/99.page#1549</guid>
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				<pubDate><![CDATA[Wed, April 15, 2009]]> GMT</pubDate>
				<author><![CDATA[ Gemini]]></author>
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				<title>Re:Girls with Autism</title>
				<description><![CDATA[ Gemini, I'm so sorry to hear how difficult your road has been. :(

It is interesting what you are saying: that your boundaries were not TOO strong (with you lost in your own world), but not strong enough.

I wonder if girls on the spectrum can "fake" being neurotypical a little bit more than boys can. If so, do they especially suffer when their disability goes unrecognized and unaccommodated? Or, even worse, is recognized by manipulative people who exploit weaknesses for their own gain?]]></description>
				<guid isPermaLink="true">http://kki.qorvis.com/forum/posts/list/99.page#1552</guid>
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				<pubDate><![CDATA[Thu, April 16, 2009]]> GMT</pubDate>
				<author><![CDATA[ Connie (IAN Staff)]]></author>
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				<title>Re:Girls with Autism</title>
				<description><![CDATA[ Hi Connie.

Yes, I think girls can fake being NT more than can boys. Maybe any boy with the disability. I say yes to the second question also: I think girls and women with the disability are more easily manipulated, or in regard to a wider range of things, than boys and men with the disability can be manipluated. If the case, then I think this would be because girls and women, with the disability which I've described, are still more wholistic thinkers and responders than are boys and men. I'm a boy, and my social responsiveness is in regard to a rathar narrow set of things, but I think these are all primarily emotive (but my mind's very foggy at the moment, so I have almost no notion right now of what I'm even saying). I do happen to know of more than a few girls who found themselves manipulated into things that they have no personally independent means of getting out of. For one of them, it was very bad, and she didn't know how to communicate to most anyone the fact that she had gotten into it in the first place without feeling that they would think she had got into it with plenty of personal autonomy and thus perfect culpibility. It makes me so angry that this happened to her. I don't know if she ever got out of it, because I lost the ability to stay in contact with her. And I have no means to help her like she needs, because I was even then myself victim of a greedy boss, and a viperous official spiritual leader, who both thought I was a superman because of how readily, and with such gusto, I responded to their wishes and demands. I was the last to know that anyone thought I was a superman, and then only after my health became so bad that I was forced to avoid any contact with anyone that did not earn me the power which money has to get me food. ]]></description>
				<guid isPermaLink="true">http://kki.qorvis.com/forum/posts/list/99.page#1580</guid>
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				<pubDate><![CDATA[Tue, April 28, 2009]]> GMT</pubDate>
				<author><![CDATA[ Gemini]]></author>
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				<title>Re:Girls with Autism</title>
				<description><![CDATA[ Gemini, I am always so sorry to hear of the struggles of people on the spectrum who have been taken advantage of. There is so much we still need to do to protect adults, especially. I have been especially glad lately to see how much the teenagers on the spectrum are being taught to self-advocate, at least where I live. It is so important.]]></description>
				<guid isPermaLink="true">http://kki.qorvis.com/forum/posts/list/99.page#1581</guid>
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				<pubDate><![CDATA[Wed, April 29, 2009]]> GMT</pubDate>
				<author><![CDATA[ Connie (IAN Staff)]]></author>
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