Introduction - Resources for Autism Researchers
To help answer the research questions that so many researchers have, the Interactive Autism Network (IAN) provides a wide variety of services and tools for researchers, including:
- Subject recruitment assistance and related services
- An extensive longitudinal and cross-sectional data set
- IAN Community, which provides an information resource for you, your clients, and your research participants
The Interactive Autism Network (IAN), is an innovative partnership of the Kennedy Krieger Institute and the Simons Foundation. In the past, it received major funding from Autism Speaks and the National Institute of Mental Health (NIMH). IAN's goal is to accelerate autism spectrum disorder (ASD) research. IAN Research is an online longitudinal database and research registry. Individuals on the autism spectrum and their families throughout the world share their information with autism researchers. U.S. residents are notified about studies for which they qualify. A variety of data about individuals with ASD, siblings, and parents is gathered through a series of online questionnaires. Some of these questionnaires are standardized, such as the Social Responsiveness Scale, while others on topics such as pregnancy, treatments, and parental depression are developed in partnership with subject matter experts. Based on the priorities expressed by researchers and the community, IAN adds questionnaires to the protocol. Since its launch in April 2007, IAN Research registered over 58,000 participants including over 20,000 individuals with ASD.
IAN Research is a research study under the auspices of the Johns Hopkins Medicine IRB (Principal Investigator: Paul H. Lipkin, MD).
IAN Community (www.IANcommunity.org)
You are now visiting Interactive Autism Network Community, where the community-at-large learns about autism research and influences its direction. It provides articles for and about noted researchers, blogs focused on autism research, and preliminary findings from IAN Research so that participants can see the value of their ongoing contributions.
Spread the Word about Interactive autism network
Please tell colleagues and affected families about IAN. We are happy to provide informational materials. Learn more.