IAN Research Questions
IAN Research is collecting the largest self- and parent/guardian-reported data set on people with autism spectrum disorder (ASD). By answering secure online questionnaires, and without leaving home, parents of children with ASD provide crucial information about their child's diagnosis, behavior, environment, and services received. At the same time, adults with ASD share valuable information about their experiences, strengths, and needs. Researchers worldwide are working with the information participants provide to learn about the effect and interaction of factors such as genetics, environment, and treatment, as well as the current situation, well-being, and needs of those affected by ASD. IAN Research also serves as a research registry, matching participants who give their permission with other local and national autism research projects studying ASD. The IAN Project is built upon a philosophy of openness, collaboration, and sharing with scientists and families alike. Individuals with ASD, their families, friends, and supporters can explorethe questions we have asked and the results.
To view the questionnaires and the current results, visit the IAN Survey Results viewer. It allows you to look at how IAN Research participants have responded to individual questions on the IAN Research questionnaires. For results before February 2013, view IAN Data Explorer. The charts and graphs show responses to individual questions and do not attempt to summarize data on complex issues.
To view charts and graphs on the overall status and trends in autism treatment, diagnosis, and expenditures, visit StateStats. These charts and graphs analyze data in IAN Research entered before February 2013. IAN Research Reports are also available for many IAN questionnaires.
(Researchers who wish to access the data for scientific purposes: please see For Researchers.)
IAN Research Questionnaires
Follow the links below to read about each of the IAN Research Questionnaires.
The Basic IAN Protocol
Child on the Autism Spectrum Questionnaires
- Child with an ASD
- Social Responsiveness Scale (SRS)
- Social Communication Questionnaire (SCQ)
- Treatment List and Questionnaire for Each Treatment
- Basic Family Information
- Mother Basic Medical History
- Father Basic Medical History
- Sibling without an ASD
Adult on the Autism Spectrum Questionnaires
- Adult with ASD Questionnaire - for independent adults with ASD
- Adult with ASD Questionnaire - for guardians of dependent adults with ASD