Simons Simplex Community
The SSC@IAN is Now the Simons Simplex Collection Registry (SSC)
If you are a research participant in the Simons Simplex Community at the Interactive Autism Network (SSC@IAN), you should have received an email from Wendy Chung, MD, PhD, to inform you that the Simons Foundation (the sponsor of the SSC) wishes to continue your family's participation in research. Effective November 26, 2018, the Simons Foundation took responsibility for the SSC@IAN registry. It is called the "Simons Simplex Collection" (SSC) registry.
If you have any questions regarding this matter, please feel free to contact the PI, Wendy Chung, MD, PhD, or other research staff at firstname.lastname@example.org.
The Interactive Autism Network (IAN) is closing, but you can continue to access the articles about your contributions to autism knowledge in this section of IAN Community through 2021. Some of these articles may be republished on the SPARK website.
Thank you for being such fantastic research partners!
The History of the Simons Simplex Collection
At autism centers across North America, families shared their children's behavioral profiles, developmental histories, and diagnoses. They contributed genetic samples to create a vital resource for autism science. When the initial family-recruitment phase of the project finished, they were invited to join the Simons Simplex Community@Interactive Autism Network (SSC@IAN). There they learned about follow-up studies and online surveys and received news about research advances made possible by SSC families. Now the SSC families are part of the Simons Simplex Collection (SSC) registry.
At SSC@IAN Articles, you will find special articles about the studies that were completed using the data you contributed by SSC families.
Watch video presentations with experts on parenting, wandering and other important autism topics at SSC@IAN Webinars.
Please stop by and "meet" some of your fellow SSC families who have been profiled in the Get to Know SSC@IAN Families section. In the Get to Know Researchers section, you will meet the scientists working with the data you provided.
Researchers hope to continue learning from your experiences and input. You will find out about studies and surveys in which SSC families participated at Research Involving SSC@IAN Families.