One mother shares her family's journey toward registering as donors with Autism BrainNet, which hopes to unravel the mysteries of autism through brain tissue research.
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Autism
How one mom pushed to get a diagnosis for her son's rare condition, find other children like hers, and amass a database of symptoms. She calls herself a "crazy obsessed, highly caffeinated, middle of the night, internet stalking, Mommy-Detective." And she has the ear of researchers on three continents.
A study finds some surprising gaps in the health care received by children and teens with autism. Despite seeing many specialists, they are more likely to skip routine physical exams and vaccines than their peers without autism.
This year, autism research saw a much bigger focus on family members of those with autism, particularly siblings. The goal of these studies is to understand the genetic and biological nature of autism so that help can be provided not just to those with a diagnosis, but to family members.
Posted:
November 4, 2016
Find out about the autism research priorities of IAN's community advisors, who include parents, adults with ASD, and professionals.
This research report looks at the parents’ concerns about their teens’ online networking and purchasing behaviors, as well as their concerns regarding online bullying (cyberbullying).
Learn about the results of an IAN study that explored how teens with autism are using the web.
A new IAN Research survey is delving deeper into the elopement and wandering patterns of children and dependent adults with autism, and looking at the prevention strategies that caregivers implement.
Watch this video to learn why it is important for families and individuals with autism to join in so we can all understand more about autism’s causes, treatments, and therapies.
Posted:
April 8, 2016
To celebrate IAN's 10th birthday, Editorial and Community Director Cheryl Cohen looks back on the past ten years and the road to becoming the nation's participant-powered autism research network.