People with autism and their families often wonder how they can help speed up research on the treatment of autism. The best way people can contribute is by participating in scientific research. Learn how.
Research participation and autism
In these videos, researchers affiliated with the Simons Simplex Community discuss their autism-related research, the research process, and the importance of family involvement in autism research.
The Interactive Autism Network (IAN) is an innovative online project bringing together tens of thousands of people affected by autism spectrum disorder (ASD) and hundreds of researchers in a search for answers. Individuals with an ASD and their families can share information in a secure setting to become part of the largest online autism research effort. The data collected by IAN both facilitates scientific research and empowers autism community leaders to advocate for improved services and resources.
The minute she heard the word "autism" as a possible concern about her son, she knew, unequivocally, the way parents sometimes do. Walk with Kriston Norris on her autism journey, part of a series of profiles of the remarkable families in IAN.
You have a child with autism to raise, school programs to consider, and behavior to manage. Why should you care about autism research?
To unlock the mysteries of autism spectrum disorder (ASD) — and develop better therapies — research across a wide variety of disciplines is essential. Scientists play a crucial role in this process, but they cannot do it alone. People with ASD and their families can play a vital part by participating in research studies and becoming informed consumers of research.
Are you curious what your fellow Simons Simplex Community families are doing now, or what has come from your research participation?
Effective November 26, 2018, the Simons Foundation took responsibility for the SSC@IAN registry. It is called the "Simons Simplex Collection" (SSC) registry.
A mother tells the story of her autism journey...and why participating in research is so important.
"If you know one person with autism, you know one person with autism," people familiar with the condition will say.